Effy Vayena, Roger Brownsword, Sarah Jane Edwards, Bastian Greshake Tzovaras, Jeffrey P. Kahn, Navjoyt Ladher, Jonathan Montgomery, Daniel O'Connor, Onora O'Neill, Martin P. Richards, Annette Rid, Mark Sheehan, Paul Wicks, John Tasioulas
- In recent years, there have been prominent calls for a new social contract that accords a more central role to citizens in health research. Typically, this has been understood as citizens and patients having a greater voice and role within the standard research enterprise. Beyond this, however, it is important that the renegotiated contract specifically addresses the oversight of a new, path-breaking approach to health research: participant-led research. In light of the momentum behind participant-led research and its potential to advance health knowledge by challenging and complementing traditional research, it is vital for all stakeholders to work together in securing the conditions that will enable it to flourish.
MetadatenAuthor: | Effy VayenaORCiDGND, Roger Brownsword, Sarah Jane Edwards, Bastian Greshake TzovarasORCiDGND, Jeffrey P. Kahn, Navjoyt Ladher, Jonathan Montgomery, Daniel O'Connor, Onora O'NeillORCiDGND, Martin P. Richards, Annette Rid, Mark Sheehan, Paul Wicks, John TasioulasORCiDGND |
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URN: | urn:nbn:de:hebis:30:3-425219 |
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DOI: | https://doi.org/10.1136/medethics-2015-102663 |
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ISSN: | 1473-4257 |
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ISSN: | 0306-6800 |
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Pubmed Id: | https://pubmed.ncbi.nlm.nih.gov/25825527 |
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Parent Title (English): | Journal of Medical Ethics |
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Publisher: | BMJ Publ. Group |
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Place of publication: | London |
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Document Type: | Article |
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Language: | English |
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Date of Publication (online): | 2016/12/21 |
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Date of first Publication: | 2015/03/30 |
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Publishing Institution: | Universitätsbibliothek Johann Christian Senckenberg |
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Release Date: | 2016/12/21 |
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Tag: | Ethics Committees/Consultation; Research Ethics; Scientific Research; Social Control of Human Experimentation; Social Control of Science/Technology |
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Volume: | 42 |
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Page Number: | 4 |
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First Page: | 216 |
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Last Page: | 219 |
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Note: | This is an Open Access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited and the use is non-commercial |
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HeBIS-PPN: | 423732005 |
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Institutes: | Biowissenschaften / Biowissenschaften |
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Dewey Decimal Classification: | 3 Sozialwissenschaften / 30 Sozialwissenschaften, Soziologie / 300 Sozialwissenschaften |
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| 6 Technik, Medizin, angewandte Wissenschaften / 61 Medizin und Gesundheit / 610 Medizin und Gesundheit |
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Sammlungen: | Universitätspublikationen |
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Licence (English): | Creative Commons - Namensnennung-Nicht kommerziell 4.0 |
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