TY  - JOUR
A1  - Blümchen, Katharina
A1  - DunnGalvin, Audrey
A1  - Timmermans, Frans
A1  - Regent, Lynne
A1  - Schnadt, Sabine
A1  - Podestà, Marcia
A1  - Sánchez, Angel
A1  - Couratier, Pascale
A1  - Feeney, Mary
A1  - Hjorth, Betina
A1  - Patel, Ram
A1  - Lush, Tessa
A1  - Ryan, Robert
A1  - Vereda, Andrea
A1  - Fisher, Helen R.
A1  - Fernández‐Rivas, Montserrat
T1  - APPEAL‐1: A pan‐European survey of patient/caregiver perceptions of peanut allergy management
T2  - Allergy
N2  - Background: Peanut allergy (PA) is associated with marked quality‐of‐life (QoL) impairment. However, data are lacking on the experience and impact of living with PA from the perspectives of persons with PA (PwPA) and their caregivers. Allergy to Peanuts imPacting Emotions And Life study 1 (APPEAL‐1) was a pan‐European survey investigating these perspectives. This first of two articles reports clinical characteristics of PwPA and PA management practices.
Methods: APPEAL‐1 was a quantitative, online survey conducted in eight European countries, developed by eight representatives of patient advocacy groups and five healthcare professionals and researchers. Eligible participants included adults with PA and parents/caregivers of PwPA who responded by self‐report and provided proxy‐report for the PwPA under their care. Data were summarized using nonweighted descriptive statistics.
Results: Of 1846 completed/analysed questionnaires, 528 were from adults with PA (self‐report); 437 by proxy for children with PA (34 aged 0‐3 years, 287 aged 4‐12 years, 116 aged 13‐17 years) and 881 from parents/caregivers (self‐report). Of PwPA (N = 965), 95% reported diagnosis by healthcare professionals, mostly by clinical history and peanut‐specific allergy testing. Rates of allergic rhinitis, asthma and other food allergies in PwPA were 50%, 42% and 79%, respectively. Only 31% of PwPA received HCP advice/support following their worst allergic reaction, and 28% had not been prescribed an adrenaline auto‐injector. Results were similar by country but varied by age group.
Conclusions: The APPEAL‐1 findings contribute to greater understanding of PA impact on PwPA, caregivers and family members and the need for improved PA management across Europe.
KW  - clinical history
KW  - diagnosis
KW  - Europe
KW  - peanut allergy
KW  - quality of life
Y1  - 2020
UR  - http://publikationen.ub.uni-frankfurt.de/frontdoor/index/index/docId/57082
UR  - https://nbn-resolving.org/urn:nbn:de:hebis:30:3-570824
SN  - 1398-9995
SN  - 0105-4538
VL  - 75
IS  - 11
SP  - 2920
EP  - 2935
PB  - Wiley
CY  - Oxford
ER  -