TY  - JOUR
A1  - Mekelenkamp, Hilda
A1  - Schröder, Teija
A1  - Trigoso, Eugenia
A1  - Hutt, Daphna
A1  - Galimard, Jacques-Emmanuel
A1  - Kozijn, Anne
A1  - Dalissier, Arnaud
A1  - Gjergji, Marjola
A1  - Liptrott, Sarah
A1  - Kenyon, Michelle
A1  - Murray, John
A1  - Corbacioglu, Selim
A1  - Bader, Peter
T1  - Specialized pediatric palliative care services in pediatric hematopoietic stem cell transplant centers
T2  - Children
N2  - Hematopoietic stem cell transplantation (HSCT) is widely used in pediatric patients as a successful curative therapy for life-threatening conditions. The treatment is intensive, with risks of serious complications and lethal outcomes. This study aimed to provide insight into current data on the place and cause of death of transplanted children, the available specialized pediatric palliative care services (SPPCS), and what services HSCT professionals feel the SPPCS team should provide. First, a retrospective database analysis on the place and cause of death of transplanted pediatric HSCT patients was performed. Second, a survey was performed addressing the availability of and views on SPPCS among HSCT professionals. Database analysis included 233 patients of whom the majority died in-hospital: 38% in the pediatric intensive care unit, 20% in HSCT units, 17% in other hospitals, and 14% at home or in a hospice (11% unknown). For the survey, 98 HSCT professionals from 54 centers participated. Nearly all professionals indicated that HSCT patients should have access to SPPCS, especially for pain management, but less than half routinely referred to this service at an early stage. We, therefore, advise HSCT teams to integrate advance care planning for pediatric HSCT patients actively, ideally from diagnosis, to ensure timely SPPCS involvement and maximize end-of-life preparation.
KW  - hematopoietic stem cell transplantation
KW  - palliative care
KW  - palliative care services
KW  - pediatric
Y1  - 2021
UR  - http://publikationen.ub.uni-frankfurt.de/frontdoor/index/index/docId/62678
UR  - https://nbn-resolving.org/urn:nbn:de:hebis:30:3-626787
SN  - 2227-9067
VL  - 8
IS  - 8, art. 615
SP  - 1
EP  - 12
PB  - MDPI
CY  - Basel
ER  -