Real-world data about emotional stress, disability and need for social care in a German IBD patient cohort

  • To date, there is insufficient insight into inflammatory bowel disease (IBD)-associated stress, recognized disability, and contact with the social care system. We aimed to assess these parameters in IBD patients and a non-IBD control group, who were invited to participate in an online survey developed specifically for this study ( with the help of IBD patients. 505 IBD patients and 166 volunteers (i.e., control group) participated in the survey. IBD patients reported significantly increased levels of stress within the last six months and five years (p<0.0001) and were more likely to have a recognized disability (p<0.0001). A low academic status was the strongest indicator of a disability (p = 0.006). Only 153 IBD patients (30.3%) reported contact with the social care system, and a disability was the strongest indicator for this (p<0.0001). Our study provides data on stress and disability in a large unselected German IBD cohort. We showed that patients with IBD suffer more often from emotional stress and more often have a recognized disability. As only about 1/3 of the patients had come into contact with the social care system and the corresponding support, this patient group is undersupplied in this area.
Author:Alica KubeschORCiDGND, Patric Boulahrout, Natalie FilmannORCiDGND, Irina Ursula BlumensteinORCiDGND, Johannes HausmannORCiDGND
Pubmed Id:
Parent Title (English):PLoS one
Place of publication:Lawrence, Kan.
Contributor(s):Giorgos Bamias
Document Type:Article
Year of Completion:2020
Date of first Publication:2020/01/03
Publishing Institution:Universitätsbibliothek Johann Christian Senckenberg
Release Date:2020/01/06
Tag:Crohn's disease; Disabilities; Emotions; Inflammatory bowel disease; Physicians; Psychological stress; Surveys; Ulcerative colitis
Issue:(1): e0227309
Page Number:10
First Page:1
Last Page:10
Copyright: © 2020 Kubesch et al. This is an open access article distributed under the terms of the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited.
Institutes:Medizin / Medizin
Dewey Decimal Classification:6 Technik, Medizin, angewandte Wissenschaften / 61 Medizin und Gesundheit / 610 Medizin und Gesundheit
Licence (German):License LogoCreative Commons - Namensnennung 4.0