TY  - JOUR
A1  - Kubesch, Alica
A1  - Boulahrout, Patric
A1  - Filmann, Natalie
A1  - Blumenstein, Irina Ursula
A1  - Hausmann, Johannes
T1  - Real-world data about emotional stress, disability and need for social care in a German IBD patient cohort
T2  - PLoS one
N2  - To date, there is insufficient insight into inflammatory bowel disease (IBD)-associated stress, recognized disability, and contact with the social care system. We aimed to assess these parameters in IBD patients and a non-IBD control group, who were invited to participate in an online survey developed specifically for this study (www.soscisurvey.de) with the help of IBD patients. 505 IBD patients and 166 volunteers (i.e., control group) participated in the survey. IBD patients reported significantly increased levels of stress within the last six months and five years (p<0.0001) and were more likely to have a recognized disability (p<0.0001). A low academic status was the strongest indicator of a disability (p = 0.006). Only 153 IBD patients (30.3%) reported contact with the social care system, and a disability was the strongest indicator for this (p<0.0001). Our study provides data on stress and disability in a large unselected German IBD cohort. We showed that patients with IBD suffer more often from emotional stress and more often have a recognized disability. As only about 1/3 of the patients had come into contact with the social care system and the corresponding support, this patient group is undersupplied in this area.
KW  - Psychological stress
KW  - Emotions
KW  - Inflammatory bowel disease
KW  - Disabilities
KW  - Surveys
KW  - Ulcerative colitis
KW  - Physicians
KW  - Crohn's disease
Y1  - 2020
UR  - http://publikationen.ub.uni-frankfurt.de/frontdoor/index/index/docId/52586
UR  - https://nbn-resolving.org/urn:nbn:de:hebis:30:3-525860
SN  - 1932-6203
N1  - Copyright: © 2020 Kubesch et al. This is an open access article distributed under the terms of the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited.
VL  - 15
IS  - (1): e0227309
SP  - 1
EP  - 10
PB  - PLoS
CY  - Lawrence, Kan.
ER  -