TY  - JOUR
A1  - Vayena, Effy
A1  - Brownsword, Roger
A1  - Edwards, Sarah Jane
A1  - Tzovaras, Bastian Greshake
A1  - Kahn, Jeffrey P.
A1  - Ladher, Navjoyt
A1  - Montgomery, Jonathan
A1  - O'Connor, Daniel
A1  - O'Neill, Onora
A1  - Richards, Martin P.
A1  - Rid, Annette
A1  - Sheehan, Mark
A1  - Wicks, Paul
A1  - Tasioulas, John
T1  - Research led by participants: a new social contract for a new kind of research
T2  - Journal of Medical Ethics
N2  - In recent years, there have been prominent calls for a new social contract that accords a more central role to citizens in health research. Typically, this has been understood as citizens and patients having a greater voice and role within the standard research enterprise. Beyond this, however, it is important that the renegotiated contract specifically addresses the oversight of a new, path-breaking approach to health research: participant-led research. In light of the momentum behind participant-led research and its potential to advance health knowledge by challenging and complementing traditional research, it is vital for all stakeholders to work together in securing the conditions that will enable it to flourish.
KW  - Ethics Committees/Consultation
KW  - Research Ethics
KW  - Scientific Research
KW  - Social Control of Human Experimentation
KW  - Social Control of Science/Technology
Y1  - 2015
UR  - http://publikationen.ub.uni-frankfurt.de/frontdoor/index/index/docId/42521
UR  - https://nbn-resolving.org/urn:nbn:de:hebis:30:3-425219
SN  - 1473-4257
SN  - 0306-6800
N1  - This is an Open Access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited and the use is non-commercial
VL  - 42
SP  - 216
EP  - 219
PB  - BMJ Publ. Group
CY  - London
ER  -