TY  - JOUR
A1  - Prüfe, Jenny
A1  - Dierks, Marie-Luise
A1  - Bethe, Dirk
A1  - Oldhafer, Martina
A1  - Müther, Silvia
A1  - Thumfart, Julia
A1  - Feldkötter, Markus
A1  - Büscher, Anja
A1  - Sauerstein, Katja
A1  - Hansen, Matthias
A1  - Pohl, Martin
A1  - Drube, Jens
A1  - Thiel, Florian
A1  - Rieger, Susanne
A1  - John, Ulrike
A1  - Taylan, Christina
A1  - Dittrich, Katalin
A1  - Hollenbach, Sabine
A1  - Klaus, Günter
A1  - Fehrenbach, Henry
A1  - Kranz, Birgitta
A1  - Montoya, Carmen
A1  - Lange-Sperandio, Bärbel
A1  - Ruckenbrod, Bettina
A1  - Billing, Heiko
A1  - Staude, Hagen
A1  - Brunkhorst, Reinhard
A1  - Rusai, Krisztina
A1  - Pape, Lars
A1  - Kreuzer, Martin
T1  - Transition structures and timing of transfer from paediatric to adult-based care after kidney transplantation in Germany : a qualitative study
T2  - BMJ open
N2  - Objectives: It is known that transition, as a shift of care, marks a vulnerable phase in the adolescents’ lives with an increased risk for non-adherence and allograft failure. Still, the transition process of adolescents and young adults living with a kidney transplant in Germany is not well defined. The present research aims to assess transition-relevant structures for this group of young people. Special attention is paid to the timing of the process.
Setting: In an observational study, we visited 21 departments of paediatric nephrology in Germany. Participants were doctors (n=19), nurses (n=14) and psychosocial staff (n=16) who were responsible for transition in the relevant centres. Structural elements were surveyed using a short questionnaire. The experiential viewpoint was collected by interviews which were transcribedverbatim before thematic analysis was performed.
Results: This study highlights that professionals working within paediatric nephrology in Germany are well aware of the importance of successful transition. Key elements of transitional care are well understood and mutually agreed on. Nonetheless, implementation within daily routine seems challenging, and the absence of written, structured procedures may hamper successful transition.
Conclusions: While professionals aim for an individual timing of transfer based on medical, social, emotional and structural aspects, rigid regulations on transfer age as given by the relevant health authorities add on to the challenge.
Trial registration: number ISRCTN Registry no 22988897; results (phase I) and pre-results (phase II).
KW  - Germany
KW  - adolescents’ health
KW  - kidney transplantation
KW  - paediatric nephrology
KW  - transfer
KW  - transition
Y1  - 2017
UR  - http://publikationen.ub.uni-frankfurt.de/frontdoor/index/index/docId/46339
UR  - https://nbn-resolving.org/urn:nbn:de:hebis:30:3-463397
SN  - 2044-6055
N1  - Copyright information: © Article author(s) (or their employer(s) unless otherwise stated in the text of the article) 2017. All rights reserved. No commercial use is permitted unless otherwise expressly granted.
This is an Open Access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/
VL  - 7
IS  - 6, e015593
SP  - 1
EP  - 9
PB  - BMJ Publishing Group
CY  - London
ER  -