- Background: In the COVID-19 pandemic, numerous researchers postponed their patient and public involvement (PPI) activities. This was mainly due to assumptions on patients’ willingness and skills to participate digitally. In fact, digital PPI workshops differ from in-person meetings as some forms of non-verbal cues and body language may be missing and technical barriers may exist. Within our project HYPERION-TransCare we adapted our PPI workshop series for intervention development to a digital format and assessed whether these digital workshops were feasible for patients, health care professionals and researchers.
Methods: We used a digital meeting tool that included communication via audio, video and chat. Discussions were documented simultaneously on a digital white board. Technical support was provided via phone and chat during the workshops and with a technical introduction workshop in advance. The workshop evaluation encompassed observation protocols, participants’ feedback via chat after each workshop on their chance to speak and the usability of the digital tools, and telephone interviews on patients’ and health professionals’ experiences after the end of the workshop series.
Results: Observation protocols showed an active role of moderators in verbally encouraging every participant to get involved. Technical challenges occurred, but were in most cases immediately addressed and solved. Participants median rating of their chance to speak and the usability of the digital tool was “very good”. In the evaluation interviews participants reported a change of perspective and mutual understanding as a main benefit from the PPI workshops and described the atmosphere as inclusive and on equal footing. Benefits of the digital format such as overcoming geographical distance, saving time and combining workshop participation with professional or childcare obligations were reported. Technical support was stressed as a pre-condition for getting actively involved in digital PPI.
Conclusions: Digital formats using different didactic and documentation techniques, accompanied by technical support, can foster active patient and public involvement. The advantages of digital PPI formats such as geographical flexibility and saving time for participants as well as the opportunity to prepare and hold workshops in geographically stretched research teams persists beyond the pandemic and may in some cases outweigh the advantages of in-person communication.
MetadatenAuthor: | Jennifer EnglerGND, Franziska Brosse, Truc Sophia DinhORCiDGND, Astrid-Alexandra KleinORCiD, Maria-Sophie BrückleGND, Jenny PetermannGND, Christiane MuthORCiDGND, Karola MergenthalORCiDGND, Marjan van den AkkerORCiDGND, Karen VoigtGND |
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URN: | urn:nbn:de:hebis:30:3-858837 |
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DOI: | https://doi.org/10.1186/s40900-022-00387-1 |
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ISSN: | 2056-7529 |
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Parent Title (English): | Research involvement and engagement |
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Publisher: | BioMed Central |
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Place of publication: | London |
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Document Type: | Article |
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Language: | English |
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Date of Publication (online): | 2022/09/16 |
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Date of first Publication: | 2022/09/16 |
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Publishing Institution: | Universitätsbibliothek Johann Christian Senckenberg |
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Release Date: | 2024/07/02 |
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Tag: | Digital workshops; Intersectoral care; Intervention development; Methods; Patient and public Involvement; Patient participation; Polypharmacy; Research design; Stakeholder participation |
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Volume: | 8 |
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Issue: | 1, art. 52 |
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Article Number: | 52 |
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Page Number: | 17 |
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First Page: | 1 |
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Last Page: | 17 |
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Note: | Open Access funding enabled and organized by Projekt DEAL. |
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Note: | Gefördert durch den Open-Access-Publikationsfonds der Goethe-Universität |
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Note: | Funding: Federal Ministry of Education and Research in Germany (BMBF) ; 01GK1906A |
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Note: | The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated in a credit line to the data. |
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HeBIS-PPN: | 520896173 |
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Institutes: | Medizin |
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Dewey Decimal Classification: | 6 Technik, Medizin, angewandte Wissenschaften / 61 Medizin und Gesundheit / 610 Medizin und Gesundheit |
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Sammlungen: | Universitätspublikationen |
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Open-Access-Publikationsfonds: | Medizin |
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Licence (German): | Creative Commons - CC BY - Namensnennung 4.0 International |
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