Research led by participants: a new social contract for a new kind of research

  • In recent years, there have been prominent calls for a new social contract that accords a more central role to citizens in health research. Typically, this has been understood as citizens and patients having a greater voice and role within the standard research enterprise. Beyond this, however, it is important that the renegotiated contract specifically addresses the oversight of a new, path-breaking approach to health research: participant-led research. In light of the momentum behind participant-led research and its potential to advance health knowledge by challenging and complementing traditional research, it is vital for all stakeholders to work together in securing the conditions that will enable it to flourish.

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Author:Effy Vayena, Roger Brownsword, Sarah Jane Edwards, Bastian Greshake TzovarasORCiDGND, Jeffrey P. Kahn, Navjoyt Ladher, Jonathan Montgomery, Daniel O'Connor, Onora O'Neill, Martin P. Richards, Annette Rid, Mark Sheehan, Paul Wicks, John Tasioulas
Pubmed Id:
Parent Title (English):Journal of Medical Ethics
Publisher:BMJ Publ. Group
Place of publication:London
Document Type:Article
Date of Publication (online):2016/12/21
Date of first Publication:2015/03/30
Publishing Institution:Universit├Ątsbibliothek Johann Christian Senckenberg
Release Date:2016/12/21
Tag:Ethics Committees/Consultation; Research Ethics; Scientific Research; Social Control of Human Experimentation; Social Control of Science/Technology
Page Number:4
First Page:216
Last Page:219
This is an Open Access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited and the use is non-commercial
Institutes:Biowissenschaften / Biowissenschaften
Dewey Decimal Classification:3 Sozialwissenschaften / 30 Sozialwissenschaften, Soziologie / 300 Sozialwissenschaften
6 Technik, Medizin, angewandte Wissenschaften / 61 Medizin und Gesundheit / 610 Medizin und Gesundheit
Licence (English):License LogoCreative Commons - Namensnennung-Nicht kommerziell 4.0